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We're a mother-daughter team.  Dot is in her late twenties and has had fibromyalgia, chronic pain and migraines for nearly 4 years. Fibro Mom is a 60-ish, sometimes crabby caregiver who works part-time.

We talk about our daily triumphs and setbacks in coping with an invisible and chronic condition.

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Saturday
Mar062010

Fibro Flames in My Veins

Is there a fireman in the house?!All my energy and concentration has been focused on Fibro World in the last several weeks.  And I've been loving it!

Fibro World is the sole creative and challenging project I've been able to work on in the past few years (aside from playing the Game of Life with Fibro Mom, of course) but alas, it seems I've gone overboard.

Although I have been using a voice recognition software program, I've overused my hands and arms and triggered a serious fibro flare up.

The voice recognition software has enabled me to use the computer on a prolonged basis (more than five minutes) for the first time in years.  I speak the words I'd normally have to type out and the text appears on the screen. I thought that by eliminating typing/keyboard action, I was not using my hands very much.

Mighty Mouse

But I still have to use a mouse.  And unfortunately, the clicking/pressing action of the mouse triggered burning pain in my hands and forearms that has become constant.

Acid Reflux of the Arms

I usually describe the daily pain and muscles spasms in my neck shoulder and back as "clenching, charley-horse-like-cramps, sharp, penetrating."

This new pain in my hands and arms, though, is like fire in my veins.  It's deep.  I feel like I'm being burned by acid from the inside out.

I'm hoping that this pain can be controlled somehow.  I'm trying to finish this post so I’ve tied a gel cold pack to each of my arms and stuck Lidoderm patches on each forearm to tamp down the pain.

One of my friends, who works at a disability resource center, recommended an online store that sells independent living aids: EnableMart.com.  I just received their assistive technology catalog in the mail and will be exploring devices that can replace my traditional mouse. If anyone has recommendations, please let me know.

Chill Pill

This has been traumatic because the only part of my body that has been free from pain is the elbow and below.  I somehow thought my hands and arms were immune to fibromyalgia pain.

Hopefully, I will be able to post again soon, meanwhile, I'm giving my arms a break to let the flames die down.

Reader Comments (4)

Hope the pain in your hands and arms eases up soon. I've had some pain in my wrists as well, but not nearly as bad as what you described. Good luck with finding an alternative to the mouse. Laura

March 7, 2010 | Unregistered CommenterLaura C-M

omg, Dot! I was doing some research as well. A lot of sites suggest track balls, or something of that sort. I'll keep my eyes peeled.

March 14, 2010 | Unregistered CommenterWayne

I'm sorry to hear about the additional pain, just know that you are an inspiration and we are here when you are able to get back into blogging!

March 19, 2010 | Unregistered CommenterMJB

The same happens to me but with my legs, it's paralyzing.. Hot tubs are recomforting. Spanish-Lo mismo me sucede pero en mis piernas, es realmente paralizante. Baños con agua caliente son reconfortantes.

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